In 2016, just as the NIH was gearing up for its first ME study in decades, Hillary Johnson talked to pop historian and ME-denier, Canadian Edward Shorter.
It's evident to me that these individuals at the NIH don't want to find the real cause of ME/CFS, or maybe they're being told not to. My husband and I both have ME/CFS with immune deficiency and I can pinpoint exactly how and from whom I caught it and the exact date. Even though both of us have identical symptoms, all institutions refused to see us, i.e. Mayo and Cleveland clinics, the Undiagnosed Disease Network, etc. I finally started to understand what we had after I read your book as well as Neenyah Ostrom's book on ME/CFS. How can the medical community ignore this serious biomarker of immune deficiency??? It is non-hiv AIDs and it is easily transmissible, i.e. saliva can transmit it!! My heart sinks further and further as each year goes by and I see that most of the individuals studying this are all going down the wrong path. They're not looking for the pathogen. So frustrating and disappointing.
It's evident to me that these individuals at the NIH don't want to find the real cause of ME/CFS, or maybe they're being told not to. My husband and I both have ME/CFS with immune deficiency and I can pinpoint exactly how and from whom I caught it and the exact date. Even though both of us have identical symptoms, all institutions refused to see us, i.e. Mayo and Cleveland clinics, the Undiagnosed Disease Network, etc. I finally started to understand what we had after I read your book as well as Neenyah Ostrom's book on ME/CFS. How can the medical community ignore this serious biomarker of immune deficiency??? It is non-hiv AIDs and it is easily transmissible, i.e. saliva can transmit it!! My heart sinks further and further as each year goes by and I see that most of the individuals studying this are all going down the wrong path. They're not looking for the pathogen. So frustrating and disappointing.