Another great article offering such important insight into the people and situations of the 80s and 90s M.E. outbreaks. We patients are so fortunate that you were there, a superb investigative journalist, documenting it all. These eyewitness accounts and your notes and recordings must not be lost to history. As they say, you "have the receipts".
Thank-you so much for sharing these stories, for both long-timers and people new to M.E. The evidence reported by you *should be* helping to get M.E. patients some justice and some proper Dx and treatment. Let's not give up hope that this will happen.
Thank you for more of your unparalleled knowledge. I would be so interested if you ever felt like writing more about the U.S./UK links in this whole tragic story. The denial is worldwide now, was it always so?
You might be interested in my Substack, 'The Right Stuff," April 2024, for insight into the way ME was viewed by the US government in the 1950s compared to the 1980s. Eye opening.
My whole backstory is pretty crazy, especially per the situation I'm in today, so I won't go into detail but I met with Dr. David Bell exactly 40 years ago. I don't live too far from Lyndonville. He struck me as a very compassionate and hard-working doctor. I wish there were more physicians like him and Dr. Cheney. Thank you for this post Hillary. I'm looking forward to part 2.
Another great article offering such important insight into the people and situations of the 80s and 90s M.E. outbreaks. We patients are so fortunate that you were there, a superb investigative journalist, documenting it all. These eyewitness accounts and your notes and recordings must not be lost to history. As they say, you "have the receipts".
Thank-you so much for sharing these stories, for both long-timers and people new to M.E. The evidence reported by you *should be* helping to get M.E. patients some justice and some proper Dx and treatment. Let's not give up hope that this will happen.
Thank you for more of your unparalleled knowledge. I would be so interested if you ever felt like writing more about the U.S./UK links in this whole tragic story. The denial is worldwide now, was it always so?
I've written about that in Osler's Web.
You might be interested in my Substack, 'The Right Stuff," April 2024, for insight into the way ME was viewed by the US government in the 1950s compared to the 1980s. Eye opening.
My whole backstory is pretty crazy, especially per the situation I'm in today, so I won't go into detail but I met with Dr. David Bell exactly 40 years ago. I don't live too far from Lyndonville. He struck me as a very compassionate and hard-working doctor. I wish there were more physicians like him and Dr. Cheney. Thank you for this post Hillary. I'm looking forward to part 2.
Your writing is excellent. I’m so glad you are documenting for us the history of ME and the history of you writing Oslers Web.
This is so excellent, as usual. Thank you so much Hillary! We met David Bell much later and loved him so much.
Excellent article! Thank you, again, for documenting the history of myalgic encephalomyelitis.